EBRAINS PPIE
This section gathers guidance on Patient and Public Involvement and Engagement (PPIE) at EBRAINS: what the terms mean, who counts as a patient or member of the public, a step-by-step guide to planning PPIE across the phases of a research or development project, and further external guidelines and patient advocacy groups. It is for anyone designing or running EBRAINS projects, tools or services who wants to involve patients, carers, or the wider public meaningfully.
What’s in this section
- Understanding Patient and Public Involvement and Engagement (PPIE): Explains the concepts, terminology and stakeholder roles behind Patient and Public Involvement and Engagement (PPIE) at EBRAINS.
- Plan PPIE for your project: A step-by-step procedure, one step per project phase, for planning and running Patient and Public Involvement and Engagement (PPIE) in an EBRAINS project.
- PPIE guidelines and resources: External guidelines, frameworks and patient advocacy groups relevant to PPIE, organised by country and organisation.